So to bring everyone up to date. I did in fact bring Kiley into the ER again on Wednesday morning. She had a really bad coughing spell and was still having troubles breathing after the neb treatment that I gave her. When we got into the ER her O2 sat was 90 and her heart rate was 189 (O2 was low, Heart rate high) This meant she was really working to breathe. They ended up doing a chest xray on her... something that was a lot more traumatic than I thought it would be. I had to strip her fevered body naked, put her on this device that look like it belonged in a torture museum. It was metal and she sat on this little board in the middle of this circle. Then her arms were strapped above her head and her body was encased in plastic. No joke... She just screamed and it made me want to cry. Kara sat through the whole thing in the back of the xray room just snoozing away. The ER was exhausting for her it seemed....
So when they came in to tell me that if Kiley didn't eat very soon they were going to put an IV in her. Uh... after the xray I had had enough. I took that baby and MADE her drink. It took awhile because she had coughing fits in between and she was so tired. But gosh I was not going to endure an IV. It probably would have been more painful for me to watch than for her to get! The respiratory therapist came down later and gave her another neb. We ended up being in the ER for almost 4 hours. Kiley's pediatrician and the ER doctor discussed her case and stated that she was borderline for admission. So they instructed me that if she had any troubles again they were going to admit her and that we shouldn't go in to the ER but straight to the children's hospital. I discussed things a little with the nurse and it is my opinion that they would have just admitted her if the hospital hadn't been so full. But as I thought about it later I decided that wasn't all bad. As long as I knew when to take her in if she got too bad we were ok. And let's face it... I may not be a doctor or a pediatric nurse but I did the "EMT thing" for a few years and I did take at least 1 year of nursing school. I probably knew how to care for my daughter better than some of the other moms out there.
They still want me to do the neb treatments on Kiley every 4 hours. Today I let it slip a little longer but she doesn't seem to be any worse for it. I think that we are finally on the mend. Honestly, this last week she looked awful. Seeing her today it made me realize that taking her in those days was the right thing, that she wasn't right even if they thought she looked 'ok.' Honestly Kiley is the type of baby that even on the brink of struggling for every breath, she will make the effort to smile at you or communicate. It's amazing how much brighter and happier she is now. We took her in to see Dr. L on Thursday because the ER wanted a follow up visit. Her O2 sats were back to 99 and her heart rate was 114. Much better. He told me she was certainly not better but that she was looking much better.
Abby's therapy went pretty well on Thursday. The therapist took out a few too many things at first and put away the one familiar activity and so for the first few minuets Abby did her typical tornado routine, unable to focus on anything. Finally when Kristen took away a few of the things Abs was able to concentrate and calmed down. I love watching her work with Abby and it has honestly helped me to become a better mom to her. I know better how to communicate with her or direct her when she gets into those modes. Granted I am a mother of three and I don't always have the strength or the time to do therapies with her or give her one on one attention all the time. But we are learning together on this. I asked Kristen what I should do when I go to places where she gets overwhelmed. Because there is no possible way that I could eliminate all of the distractions when we go. She said that it is a good idea to try and work Abby's muscles really well before we go places because it will help organize her. There are also pop tubes that we can bring along in the diaper bag that are really good therapy activities.
Abs and I have gone on walks quite a bit lately. She is so cute in her bright yellow boots and pom pom stocking hat. She loves to splash in the puddles. Sometimes she will run a bit ahead of me yelling 'faster! faster!" or say "aw-kee snow" or any other manner of things. It has been fun, all except when she gets tired and makes me carry her the last few blocks. She's only 24 pounds but man... that gets heavy after awhile! I can't wait to do more walks as the weather improves. I only wish I could have taken a few pictures because she was so cute.
Well I think Tom left me to go to bed. I hope that I caught everyone up to date a little. Tom's mom came up Wednesday and has been helping out with Abby, the babies and the laundry. I also got to go do a little shopping and had a little fun in Hobby Lobby :) I love that store too much.
Night!







